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i've looked in the east, i've looked in the west, the places only we knew best. i've heard you whispering in the night but wake to silence with the light. i see you quicken yet not be there. just a movement of the air. and then in rage the demon rears with anger, pain, and endless tears. yet once or twice... was that your touch? i know my sorrow must hurt you much. and for just a bit i finally see: it isn't you that's lost but me. love, momma
Welcome. This site celebrates the life of our beloved daughter, Caitlin Elizabeth Mayes who was born in Vermont on June 30, 1986 and passed over on November 27, 2005, Thanksgiving weekend, at the age of 19.
Cait battled Acute Lymphocytic Leukemia for almost 5 years. She was diagnosed on March 16, 2001 when she was 14 yrs old. She lost her teenaged years to the demon. She turned 'Sweet 16' in hospital with a fever and vomiting. She once had a fever of 108+ degrees and had to be life-flighted to Children's Hospital in Pittsburgh, where she received her cancer treatment...she loved the flight as one of the 'guys was really cute, mom!'
Cait underwent more painful bone-marrow aspirations than I can remember. She did a lot of porcelain hugging after various chemos, had mediports put in, taken out, put in, taken out due to problems. Some years she spent more time in hospital than out. Yet she never gave up.
When relapsing 10 months after undergoing the hell of a bone-marrow transplant, and I had told her that I could not in good conscience push her to undergo another bmt if they got her back in remission, she said: 'If that's what it will take to get me well, then that's what I'll do, mom; I am NOT going to stop fighting now, after all this time!'
Even when her oncologist at Childrens Hospital in Pittsburgh whom we'd worked with for almost 5 years had stopped believing in her, she never stopped believing in herself. The lack of faith hurt, but she just kept going. However, sometimes OTHERS make decisions that even the strongest of us cannot overcome! She was brave, endearing, manipulative, intolerant of injustice, guileless, bright, creative...all the traits that make one interesting and wonderful. Cait's heart was the biggest part of her, and whomever she met gained so much just by knowing her. She gave more than she ever took...she is my hero.
Caitie at 4 by A. Mayes
when looking back at choices and the paths we've had to take a heart is sometimes shattered; it needn't merely break.
we did our best, it wasn't enough, we tell ourselves each day. yet in the end, there's only love... there's not much more to say.
but now that you are safe and far beyond the pain, it's we who need to learn to live in this world again.
one day i'll put out my hand and you will grasp it, tight... that is when i'll really know: morning's come, it's over...this dark night. love, momma
 This was an exercise from our grief counselor. I was to do the word HOPE in any form. I chose to do it in the form of a puzzle, with each letter representing a member of our family. H=Daddy, O=Caitie, P=Mick, and E=Momma (me). The one piece with the question mark doesn't belong in the puzzle, of course...and it's the one that I feel equates with the unexpected, oft-times devastating things life throws our way, ie caitlin's leukemia.
I hope there's dancing where you are. And young men noble and bold. Moonlit sand to walk upon, A special hand to hold. You watched as others lived their lives And longed to be a part. But the curtain fell, the play was done Ere you could give your heart. Yet now you're free! No more pain! I sense your smile, bright as the sun. Flowing dresses, flowing hair... A new stage built, a new play begun. So tonite when I look above And wish upon a star It will be for one thing only, my pet: That there's dancing where you are. love, momma
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I want to thank my dear friends of the eBay Soapbox for their compassion, support and incredible generosity following Cait's passing. I could not have survived the time immediately following that terrible, terrible day without the kindness, time and attention they offered at a busy time of year.
I can never thank them enough for all they did for our family. Each of them is a special person who makes the world a better place just by living in it. Love to you all, Annie ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~
A special thanks is given to the many wonderful nurses and other staff members of Children's Hospital of Pittsburgh. Especially the nurses of 8N, where Caitie spent many, many weeks over the 5 years.
The dedication of these people is to be admired and praised. Without them, our kids would not have any chance at all.
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